http://www.thisislincolnshire.co.uk/Children-like-Sebastien-helped-Jeans-Day/story-19810688-detail/story.html#axzz2fFkP2gM8
This story is about a PMS child, Sebastien, and his family raising awareness for PMS!
Blame It On The Genes
Raising Awareness for Phelan McDermid Syndrome (22q13 Deletion Syndrome)
Wednesday, September 18, 2013
PMS September Newsletter
http://myemail.constantcontact.com/-PMSF-September-Newsletter.html?soid=1104174981954&aid=cVoO8lt6UNE
Click this link to read the PMS Foundation Newsletter!
Click this link to read the PMS Foundation Newsletter!
Wednesday, July 17, 2013
PMSF July Newsletter
The July Newsletter contains information about the 2014 Family Conference!
http://myemail.constantcontact.com/-PMSF-July-Newsletter.html?soid=1104174981954&aid=9TSGGgUSTf4
http://myemail.constantcontact.com/-PMSF-July-Newsletter.html?soid=1104174981954&aid=9TSGGgUSTf4
Study Catalogs Features of P-MS
An article was recently released that mentions many features of P-MS and includes information about how deletion size plays a role.
http://sfari.org/news-and-opinion/news/2013/study-catalogs-features-of-phelan-mcdermid-syndrome?utm_source=Autism+research+news+from+SFARI.org&utm_campaign=5c8167554b-SFARI_Newsletter_130716&utm_medium=email&utm_term=0_0a60ccb345-5c8167554b-388495566
http://sfari.org/news-and-opinion/news/2013/study-catalogs-features-of-phelan-mcdermid-syndrome?utm_source=Autism+research+news+from+SFARI.org&utm_campaign=5c8167554b-SFARI_Newsletter_130716&utm_medium=email&utm_term=0_0a60ccb345-5c8167554b-388495566
Tuesday, April 30, 2013
Addi's Angels - Raising Awareness
Addi's Angels will be having a fundraiser to help support the Phelan-McDermid Syndrome Foundation on Saturday, May 4th in Loganville, GA.
Check out the Web Site
http://addisangels.org/
Press Release
http://www.newtoncitizen.com/news/2013/apr/29/fundraiser-for-child-with-rare-condition-takes/
Check out the Web Site
http://addisangels.org/
Press Release
http://www.newtoncitizen.com/news/2013/apr/29/fundraiser-for-child-with-rare-condition-takes/
PMSF International Associations
The Phelan-McDermid Syndrome Foundation has announced a few new International Associations. Check them out through the weblinks below.
Spanish
http://www.22q13.org.es/
Italian
http://www.aisphem.org/index.php/en/
French
http://www.lauradephelanmcdermid.com/
Spanish
http://www.22q13.org.es/
Italian
http://www.aisphem.org/index.php/en/
French
http://www.lauradephelanmcdermid.com/
Tuesday, April 16, 2013
PMSF APRIL NEWSLETTER
Click the link below to read the Phelan-McDermid Syndrome's APRIL Newsletter.
http://myemail.constantcontact.com/-PMSF-April-Newsletter.html?soid=1104174981954&aid=VbSQGCI95gI
http://myemail.constantcontact.com/-PMSF-April-Newsletter.html?soid=1104174981954&aid=VbSQGCI95gI
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