Wednesday, September 18, 2013

Raising Awareness - Story About Sebastien & Jeans Day in the UK

http://www.thisislincolnshire.co.uk/Children-like-Sebastien-helped-Jeans-Day/story-19810688-detail/story.html#axzz2fFkP2gM8

This story is about a PMS child, Sebastien, and his family raising awareness for PMS!

PMS September Newsletter

http://myemail.constantcontact.com/-PMSF-September-Newsletter.html?soid=1104174981954&aid=cVoO8lt6UNE

Click this link to read the PMS Foundation Newsletter!

Tuesday, April 30, 2013

Addi's Angels - Raising Awareness

Addi's Angels will be having a fundraiser to help support the Phelan-McDermid Syndrome Foundation on Saturday, May 4th in Loganville, GA.

Check out the Web Site
http://addisangels.org/

Press Release
http://www.newtoncitizen.com/news/2013/apr/29/fundraiser-for-child-with-rare-condition-takes/

PMSF International Associations

The Phelan-McDermid Syndrome Foundation has announced a few new International Associations.  Check them out through the weblinks below.

Spanish
http://www.22q13.org.es/

Italian
http://www.aisphem.org/index.php/en/

French
http://www.lauradephelanmcdermid.com/